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Misc.kids Frequently Asked Questions:
Allergies and Asthma

Resources

Revision 1.4

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This FAQ is intended to answer frequently asked questions on allergies and asthma in the misc.kids newsgroup. Though the comments are geared towards parents of children, there is plenty of information for adults as well. Before reading the FAQ, please read the disclaimer.

To contribute to this collection, please send e-mail to the address given below, and ask me to add your comments to the FAQ file on Allergies and Asthma. Please try to be as concise as possible, as these FAQ files tend to be quite long as it is. And, unless otherwise requested, your name and e-mail address will remain in the file, so that interested readers may follow-up directly for more information/discussion.

This FAQ is posted regularly to news.answers and misc.kids.info.

For a list of other misc.kids FAQ topics, look for the FAQ File Index posted to misc.kids.info or tune in to misc.kids.

Collection maintained by Eileen Kupstas Soo (kupstas@cs.unc.edu)

There are many contributors involved in this FAQ.. many thanks for all the work!

© 1996-2007 Eileen Kupstas Soo

This page (http://www.cs.unc.edu/~kupstas/FAQ_resources.html) last modified: February 12, 2001

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Book reviews have been moved. The reviews page includes reviews of general books about allergy and asthma, as well as books on food allergies.

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Topic Index:

0) Disclaimer

1. Support Groups
2. Pamphlets & Periodicals
3. Food Allergy Food Sources
4. Environmental Allergy Information
5. Allergy/Asthma Products
6. Net and Web Resources

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Support Groups

American Academy of Allergy Asthma & Immunology (AAAAI)

611 East Wells St.
Milwaukie, WI 53202
(414) 272-6071
(800) 822-ASMA (2762)

Professional association of allergists; provides information booklets and referrals to specialists in your area.

The American Academy of Environmental Physicians (913) 642-6062

Maintains list of physicians who work with chemical sensitivities.

American Allergy Association

PO Box 7273
Menlo Park, CA 94026

An association of people suffering from allergies, as well as interested physicians and medical personnel. The association distributes a newsletter, book reviews, professional articles, and recipes. They have many publications, including _Allergies in Infants_.

American Celiac Society & Dietary Support Coalition

Annette Bentley
58 Musano Court
West Orange, NJ 07052-4114
201/325-8837 in New Jersey
$25 US, as of this revision

Celiac Disease Foundation ($35/yr, starter info free)

Elaine Monarch
13251 Ventura Blvd. Suite 3
Studio City, CA 91604-1838
818-990-Celiac (818-990-2354)

Celiac Sprue Association/USA ($20/yr - $24 first year for new members)

Leon Rottman
PO Box 31700
Omaha, NE 68131-0700
402/558-0600 in Nebraska.

American College of Allergy and Immunology

800 E. Northwest Highway, Ste. 1080
Palatine, IL. 60067
(708) 359-2800 or 1-800-842-7777

American Lung Assocication of Contra Costa

(510) 935-0472

American Lung Association of Santa Clara

(408) 998-5864

Has pamphlets on lung disease, smoking and offers asthma summer camps for children

Asthma & Allergy Foundation of America

1125 15th. Street N.W., Ste. 502
Washington, D.C. 20005
(800) 624-0044 or (800) 7-ASTHMA [(800) 727-8462]

Offers referrals to affliated support groups and specialized medical services througout the country and a newsletter.

Allergy and Asthma Network/Mothers of Asthmatics, Inc

(updated address, as of June 27, 1997)
10400 Eaton Place Suite 107
Fairfax, VA. 22030
(703) 691-3179
(800) 929-4040

Publishes a monthly newsletter with practical information for patients and families. Also has books, videos and other educational material available

Canadian Celiac Association (Diet for Life Handbook $17.95 + $3)

6519B Mississauga Road (member $ vary, use credit card)
Mississauga, Ontario L5N 1A6
905-567-7195 (800-363-7296 in Canada)

E.L.A.S.T.I.C. (Education for Latex Allergy / Support-Team and Information-Coalition)

Information and support for individuals with latex allergies, education, health information. To subscribe to the Latex Allergy News, and become informed of current developments in research advancements, survival skills and ELASTIC proceedings, please contact:
Debra Adkins, Editor
176 Roosevelt Ave.
Torrington CT 06790
(203) 482-6869
FAX: (203) 482-7640
Compuserve 76500,1452

Contacts in many states are being established now, if you have any interest in participating in any area, please contact:

Elizabeth C. Borel DMD ELASTIC
196 Pheasant Run Rd.
West Chester, PA 19380
(610) 436-4801
Compuserve 102246,126
—or—
Nancy A. Mitchell ELASTIC
3 Folsom's Pond Rd.
Wayland, MA 01778
(508) 358-5979
nam1@ix.netcom.com

The Food Allergy Network

10400 Eaton Place Suite 107
Fairfax, VA 22030-2208
703-691-3179
fax 703-691-2713

Non-profit organization that puts out a newsletter ($24.00US) on food allergies, that covers allergy-related subjects such as eczema, allergen-free recipes, drug updates, news updates, a dietician's column. They also sell a number of reasonably priced booklets and cards to help you cope with schools, information on anaphylaxis (potentially lethal allergic reactions), how to read food labels so as to avoid allergens (ex. soy products go by many names in packaging). Sample newsletter and information sent on request.

Gluten Intolerance Group of North America

($25/yr + $13.45 starter pack)
Elaine Hartsook
PO Box 23053
Seattle, WA 98102
206-325-6980

Greater Philadelphia Celiac-Sprue Support Group

(extensive starter pack)
Phyllis J. Brogden
6318 Farmar Lane
Flourtown, PA 19031
215-836-7518

The Human Ecology Action League (HEAL)

PO Box 29629
Atlanta, GA 30359-1126
(404) 248-1898

Information on multiple chemical sensitivities (MCS)

Marion Merril Dow Pollen Hotline:

1-800-POLLENS

National Jewish Medical and Research Center

(800) 222-5864
Provides information on lung disease through the toll free LUNG LINE Accepts patients thru physician referral

Details:
The National Jewish Center (NJC) is probably the leading research and treatment center for asthma and other immunological diseases in the world. In addition to providing specialized treatment, NJC conducts pharmaceutical trials, consultations, publishes a newsletter, and provides many other highly specialized and helpful services. Two of note include:

• The 24-hour National Jewish Lung Line (TM) which is staffed by specially trained nurses. Call 1-800-222-LUNG.
• The 24-hour National Jewish Lung Facts (TM) - pre-recorded information on respiratory and immunological diseases and programs at NJC. Call 1-800-552-LUNG

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Pamphlets & Periodicals

Allergy & Asthma Guide from BioTech Health Systems, Ltd

(800) 621-5545

products pamphlet about bedding protectors , HEPA air cleaners etc...

Allergy Control Products

(800) 422-DUST (or (800) 422-3878)

Provides pamphlets & educational video and books; and allergy products.

American College of Allergy and Immunology

(800) 842-7777 or (708) 359-2800

Provides free brochure entitled "Advise from your Allergist"

Air Currents

published by Allen & Hanburys Respiratory Institute
Five Moore Drive
Research Triangle Park, NC 27709

LungLine Letter

published by The National Jewish Center for Immunology and Respiratory Medicine.

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Food Allergy Food Sources

Ener-G Foods

P.O. Box 84487
Seattle, WA 98124-5788
206-767-6660
800-331-5222
in Washington State 800-325-9788
Fax 206-764-3398

You can call them for their free Allergy packet of information. They manufacture and sell baking mixes, ready-made baked items, recipes (sorted by 45 dietary criteria) and specialize in products for those on gluten-free, wheat-free, egg-free, corn-free, soy-free, milk-free or low protein diets. The order form groups products by what they DON'T have (ex. wheat, eggs) and tells you the ingredients for each item. Sold by single package or by the case. Some of their products can be found in good health food stores. But if you want to buy it in bulk and save a decent amount of money, try one package from either a store or the manufacturer to see if you like it, and then place a bulk order with Ener-G. They also sell products for people with renal failure and malabsorption syndrome (Celiac-Sprue).

King Arthur Flour Company — Vermont

has xanthan gum.
800-827-6836

Note: it may be cheaper to purchase xanthan gum from a local source, if you have one. Try local health/alternative food stores.

Moore Natural Foods Inc.

5209 S.E. International Way
Milwaukie, Oregon 97222
(503) 654-3215

Whole grains, whole grain flours, other flours (garbonzo bean flour, etc.), breakfast grain mixes, beans, cooking needs (baking powders, xanthan gum, etc.), carob products, and lots else for those allergic to various grains or those who want natural foods. Products come in small units (about 1 pound) up to 25 pound units. 20 page catalog.

Rice Innovations Inc.

1773 Bayly Street
Pickering, Ont., Canada L1W 2Y7

Makes a line of rice-based pastas that are available in some health food stores and co-ops. One netter recommends this as the best of the substitutes.

TAD Enterprises

9356 Pleasant
Tinley Park, IL 60477

Carries ESSEN brand products (grain flours, low gluten bread mix, etc.) and FeatherWeight brand products (low sugar, salt substitutes, etc.)

Daily Bread Co.

P.O. Box 1091
Portsmouth, NH 03802-1091 USA
US 1-800-635-5668

Makes "Quick Bread", a bread mix that comes in various flavors. They contain no dairy, yeast, or egg.

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Alpineaire, PO Box 1600, Nevada City, CA 95959, (800) 322-6325

Anglo-Dietetics, Ltd., PO Box 333, Wilton, CT 06897, (203) 762-2504

Authentic Foods, PO Box 48813, Los Angeles, CA 90048, (213) 934-0424

Backpacker's Pantry, 1540 Charles Dr., Redding, CA 96003, (916) 241-9280

Basco Gluten Free Products, PO Box 1498, Monument, CO 80132 (800) 692-7323

Celia Cooks, PO Box 728, Ramsey, NJ 07446, (800) 934-0987

Chicago Dietetic Supply, Inc., Dept. 25, PO Box 529, La Grange, IL 60525, (312) 352-6900

Conrad Rice Mills, PO Box 296, New Iberia, LA 70560, (800) 551-3245

Cooks Flavoring Co., PO Box 890, Tacoma, WA 98401, (206) 727-5499

Cybros, Inc., PO Box 851, Waukesha, WI 53187, (800) 876-2253

Darla M. Gennings, 6026 Blue Mist Lane, Dallas, TX 75248, (214) 733-0172

DeBoles Nutritional Foods, Inc., 215 Hillside Ave., Williston Park, NY, (516) 742-1252.

Dietary Specialties, PO Box 227, Rochester, NY 14601, (800) 544-0099

Elam's, 2625 Gardner Rd., Broadview, IL 60153, (708) 865-1612

El Molino Mills, 345 N. Baldwin Park Blvd., City of Industry, CA 91746, (206) 962-7167

Farms of Texas Co., PO Box 1305, Alvin, TX, (800) 232-7423

Fearn Soya Foods, Division of Modern Products Inc. Milwaukee, WI 53209

Foods By George, 108 Schimmel Street, Paramus, NJ 07652

Food-For-Life Baking Co., 3580 Pasadena Ave., Los Angeles, CA 90031, (213) 227-1985

Garden Spot Distributors, 438 White Oaks, New Holland, PA 17557, (800) 829-5100

G&I Kosher Bakery, 76-10 Main St., Flushing, NY 11367, (718) 261-1157

The Gluten-Free Pantry, PO Box 881, Glastonburry, CT 06033, (203) 633-3826

The Gluten-Free Cookie Jar, PO Box 52, Trevose, PA 19053, (215) 355-9403

David Goodbatters', PO Box 102 Dept. M, Bausman, PA 17504, (717) 872-0652

Henkel Corp., 4620 West 77th St., Minneapolis, MN 55435, (612) 546-3285

King Arthur Flour, RR 2, Box 56, Norwich, VT 05055, (800) 827-6836

Legume Plus, PO Box 383, Fairfield, WA 99021, (800) 845-1349

Lundberg Farms, Inc., Richvale, CA 95974-0369, (916) 882-4551

Med-Diet Laboratories, Inc., 695 Hopkins Crossroad, Minnetonka, MN 55343, (800) 633-3438

Miss Roben's, PO Box 1434, Frederick, MD 21702, (800) 891-0083

Old Windmill Specialty Foods, 5014 16th Ave., Suite 202, Brooklyn, NY 11204, (800) 653-3791

Omega Nutrition, 1720 Labountry Road, Ferbdale, WA 98248, (800) 661-3529

NuVita Foods, Inc., 7624 SW. Macadam, Portland, OR 97219, (503) 246-5433

Pamela Products, 156 Utah Avenue, CA 94080, (415) 952-4546

Patti Pastries, 1211 Tree St., Philadelphia, PA 19148, (215) 336-5004

The Really Great Food Company, PO Box 319, Malverne, NY 11565, (516)593-5587

Red Mill Farms, 290 South 5th Street, Broyklin, NY 11211, (718) 384-2150

I. Rokeach & Sons, Inc., Englewood Cliffs, NJ 06732

Season Products Corp., 34 Loretto St., Irvington, NJ 07111, (800) 631-7990

Shilo Farms, PO Box 97, Sulphur Springs, AK 72768, (501) 298-3297

Snack Cracks, Inc., PO Box 3608, Chico, CA 95927, (800) 828-8828

Sterk's Bakery, 3866 23rd St., 1402 Pine Ave., Niagara Falls, NY 14301, (800) 608-4501

Vans International, (310) 320-8611

Vita-Wheat Bakery, 1839 Hilton Rd., Ferndale, MI 48220, (313) 543-0888

Walnut Acres, Penns Creek: PA 17862, (800) 433-3998

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Environmental Allergy Information

Bachman, Judy,
Allergy Environment Guidebook: New Hope & Help for Living & Working Allergy-Free,
c. 1990, Putnam Publishing Group,
257 pages.

Information on allergies, effects of stress, advice on building, decorating, remodeling and otherwise coping with allergies. More depth and detail than most books on environmental allergies.

Aslett, Don,
Make Your House Do The Housework,
c. 1986 Writer's Digest Books,
201 pages.

Tells you how to design and decorate a house so that it requires a minimum of cleaning and maintenance.

Consumer Reports, Oct 1992,
reviews a number of air purifiers. Friedrich C90 is the top-rated model. 512-225-2000 is the Friedrich number. A mail-order provider is S and S Buying Service, 212-575-0210.

Consumer Reports, Feb 1993,
reviews vacuum cleaners, including the Nilfisk GS 90. They found it effective at filtering dust particles. Suggested that the best solution for the severely allergic may be to limit the use of carpeting.

The National Center for Environemental Health Strategies (NCEHS) publishes a newsletter, runs a clearing house for sources of perfume free products, distributes literature, and other related information. (No current address; will try to find that.)

USENET misc.consumers.house archive on central vacuum cleaners.

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Allergy/Asthma Products

Allergy Control Products Inc.

96 Danbury Road
Ridgefield CT 06877
1-800-422-DUST

Provide free (with orders?) pamphlets on Cat Dander, House Dust/Mites, Understanding Vacuum Cleaners Vacuum Exhaust and Allergen Containment, Mold Spore Allergy. Products include: special mattress/pillow covers, blankets (Vellux), room cleaners (filter room air), face masks, vacuum filters (don't let the dust/dirt back out of vacuum), high filtration vacuum cleaner bags, Miele canister Vacuum cleaner, filters for A/C, and central heating systems, Allergy Control Solution (neutralizes dust mmite and their feces, a primary allergen for many people). They offer a pamphlet, "Understanding Vacuum Cleaners, Vacuum Exhaust and Allergen Containment." Separate catalogs for dust, mold, and cat allergies.

I have used their vacuum filters, Allergy Control Solution and mask. All very good and extremely helpful.

Medic Alert medallions

Medic Alert Foundation, Box 1009, Turlock CA 95380.

Bio-Tech Systems

1-800-621-5545.
A 17 page catalog containing information and products related to dust allergies, mold allergies, and asthma. Filters, masks, mattress and pillow encasings, dust sealants, dust mite removers, mold preventers, nebulizers.

Allergy and Asthma Products Company

1-800-221-6483.
A 5 page guide to dust, mold, and asthma control, and 2 pages of products. Filters, bedding protectors, sprays, masks.

Allergy Free, Inc.

Dickinson Texas (1-800-ALLERGY)

The AL-R-G Shoppe, Inc.

305-981-9182.
A 17 page catalog. Lots of cosmetics, jewelry, plus the usual filters and mattress encasings.

Allergy Controlled Environments

1-800-882-4110

Allergy Relief Shop

615-522-2795
2932 Middlebrook Pike
Knoxville, TE 37921

Allergy Supply Company

1-800-323-6744 or 1-703-391-2011
11994 Star Court
Herndon VA 22071

(they have a great catalog that specializes in respiratory products like spacers and TONS of helpful hints.)

Healthscan

1-800-962-1266
carries health care equipment including great peak flow meters like Assess (TM), and a great new spacer called OptiHaler (TM) which made a phenomenal difference in my personal asthma management - call for a catalog.

Fisons

1-800-621-5545
(carries allergy control products - call for the catalog.)

Mimic Kidswear

(1-800-450-3301 or fax: 416-446-7755 or e-mail mimic@ican.net)
Cotton clothing for children with food allergies and asthma; some of the clothing has informtion about the child's condition or requests "No smoking". Also, sew-on patches, etc. to inform others of child's needs.

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Net Resources

Mailing lists

Asthma/Allergies Mailing List:
To join, send mail to asthma-request@infopro.com.
Post by sending mail to asthma@infopro.com

Allergy LISTSERV

To join, send mail to the administrative robot at LISTSERV@listserv.tamu.edu with the message:
get Allergy welcome

alt.support.non-smoker

Alt.med.allergy Newsgroup

Alt.support.asthma Newsgroup

This group has two FAQs: Alt.support.asthma FAQ and Alt.support.asthma Asthma Medications FAQ

The Alt.Support.Asthma Reading And Resource List

This list was developed and is maintained by Lynn Short (lfshort@europa.com)

Celiac Listserv

To subscribe, send mail to:
LISTSERV@MAELSTROM.STJOHNS.EDU
or, if you are on a bitnet site,
LISTSERV@SJUVM.BITNET
with SUBSCRIBE CELIAC yourfirstname yourlastname in the body.

You will be sent information on how to use the mailing list, and how to access the archives. The FAQ can be obtained by putting GET CELIAC FAQ in the body of a message to the list server. Even more info is available if GET NEWCEL PACKAGE is included.

MCS Listserv

There is a mailing list for people with chemical sensitivities called mcs-immune-neuro. To join, send email to
listserv@maelstrom.stjohns.edu
and in the BODY write:
subscribe mcs-immune-neuro Your Name
The list is run by Ginny Kloth (bijou@blrg.tds.net).

No-Milk List

The No-milk list (Milk/Casein/Lactose-free mailing list) is an open, unmoderated discussion list for those following a milk/casein/lactose-free diet, and for people with an interest in milk-free issues.

To join, send email to
LISTSERV@MAELSTROM.STJOHNS.EDU
and in the BODY write:
SUB NO-MILK YourFirstName YourLastName
The list is run by Max Desorgher (maxdes@xs4all.nl).

FAQ on Asthma from sci.med

NOTE: this is not geared towards asthma in children but does have some useful information for children.
Keeper: ???

Peanut allergies

Betsy Wilson (Elizabeth.Wilson@jpl.nasa.gov) has a set of ideas for parents of children with peanut allergies. She lists what she has done to make their situation work best.

Rec.food.veg.recipes

milk-free, egg-free recipes

misc.consumers.house

information on household products

World-Wide Web resources

I assume that if you are interested in Web sources, you have have Web access; therefore, I'll just point you to my Allergy and Asthma FAQ Web page and save myself some typing!

FAQ Home Page

This page has links to the FAQ (what you have now) and to Web pages on institutions and groups, Internet newsgroup pages ( same as listed earlier in this FAQ), gluten-free diets pages, miscellaneous allergy and asthma information, and allerg/asthma product pages.

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